At Your Appointment

Thyroid Eye Disease Appointment Guide

Ask the right questions at your next doctor’s appointment. Answer two questions below to personalize your appointment guide.

• Has a doctor diagnosed you or your loved one with thyroid eye disease?

  1. Yes, diagnosed
  2. No, undiagnosed
• Will this appointment be an in-office visit or an online/telehealth appointment?

  1. In-office visit
  2. Online/telehealth appointment
Submit

Top Questions Your Doctor May Ask You About Thyroid Eye Disease If you’re having a telehealth appointment, it's helpful to keep these things in mind. Test your computer or smartphone to make sure you can log in without difficulties. Since the doctor can’t examine you in person, be very specific about your symptoms. Print this appointment guide or write down your questions so you remember what to ask, and consider having someone sit with you to listen in. Have your medicines with you so you can show the doctor the labels and doses, and if you are interested in a specific treatment, be sure to ask about it.

• Please describe the symptoms and issues you’re having that led you to schedule this online appointment. Start at the beginning of this current episode and tell me how and when things have changed and progressed.
• Are your vision problems getting worse, staying about the same, or getting better?
• Are you having other symptoms, such as weight loss, sweating, trouble sleeping, anxiety, nervousness, or sexual problems?
• Which home treatments have helped soothe your eyes?
• Are you currently receiving treatment for hyperthyroidism?
• Are you ready to try corticosteroids, biologic medications, radiation therapy, or surgery?
• Describe your symptoms. Do you have vision changes, double vision, difficulty closing your eyes completely, light sensitivity, or pain, pressure, or other sensations in the eyes?
• When did you first notice problems or changes with your vision?
• How severe are your symptoms?
• What makes your symptoms better or worse?
• Have you ever had an eye condition, injury or surgery?
• Do you, or anyone in your family, have thyroid disease?
• What side effects are you experiencing?
• What new symptoms are you experiencing?
• What is your main concern about your eyes and vision?

Top Questions To Ask Your Doctor About Thyroid Eye Disease Many people forget to ask important questions at their doctor's appointments. You may want to print or write these questions down before your appointment so you remember to get the answers you need.

• How advanced is my case of thyroid eye disease?
• Does thyroid eye disease typically progress? Am I at risk of permanent vision loss or even going blind?
• Does thyroid eye disease ever get better on its own?
• Will correcting my thyroid hormone levels slow or cure my thyroid eye disease?
• What are my treatment options, including medicines, surgery, and other therapies?
• How successful are these treatments? What is my prognosis?
• What is the most likely cause of my vision problems and eye symptoms?
• Could another condition be causing or contributing to my vision problems and eye symptoms?
• What tests do I need to confirm a diagnosis of thyroid eye disease?
• What treatments are available for thyroid eye disease?
• What strategies can I use to soothe my eyes?
• Are the side effects I'm experiencing related to my medicine for thyroid eye disease?
• Do my new or different symptoms mean my thyroid eye disease is getting worse?
• What is the best treatment for my thyroid eye disease?

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