3 Things to Tell Your Doctor About Your Thyroid Eye Disease

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Managing thyroid eye disease (TED) can be challenging, which is why it’s important to build a strong relationship with your ophthalmologist.

At your next appointment, don’t forget to mention if you’re experiencing these three things:

If not properly managed, thyroid eye disease can lead to permanent physical changes and even partial or complete vision loss–but it doesn’t have to happen. Always tell your doctor if you’re experiencing thyroid eye disease symptoms, like irritation or grittiness in the eyes, eye redness, excessive tearing, dry eye, light sensitivity, double vision, bulging eyes, or a feeling like you can’t close your eyes, especially if you’re sticking to your medication as prescribed. If you do notice any of these symptoms, your doctor can determine next steps to get your TED better controlled.

Managing your thyroid eye disease means you must stick to your doctor’s treatment plan, committing to taking medications as prescribed and following surgery recovery instructions. However, it can be challenging to keep taking your TED medications if you’re experiencing side effects or your treatment schedule doesn’t work with your lifestyle. If this sounds familiar, you’re not alone–steroids are commonly prescribed for TED symptoms but are known to have difficult side effects. You may also have to keep track of applying eyedrops throughout the day. Plus, treatment for TED often comprises several lifestyle changes and alternative therapies, which can be hard to stay on top of. If you aren’t able to stick to your treatment plan, there’s nothing to be ashamed about. Be honest with your doctor about why you’re having trouble so you can work together to find a solution, which might mean a different drug, dosing schedule, or lifestyle change.

Dealing with a chronic condition like thyroid eye disease can be challenging and scary, and the majority of people with TED also have some form of thyroid disease on top of that. For patients living with these conditions, it’s common to experience stress, anxiety, and depression. Fortunately, there are effective resources available to help you cope with the emotional side effects of life with thyroid eye disease, from medications to meditation. Don’t be afraid to tell your doctor how you’ve been feeling. He or she can guide you to find the appropriate support and better manage your mental health. Getting outside help to boost your emotional wellbeing doesn’t mean you’ve failed; it means you’re using all the tools in your toolbox to live a fulfilling and healthy life.

Living with thyroid eye disease can be difficult, but connecting with an ophthalmologist you trust can make all the difference. If you’re open and honest about what you’re experiencing, you’re on your way to staying in control of your condition.