At Your Appointment

Autosomal Dominant Polycystic Kidney Disease Appointment Guide

Ask the right questions at your next doctor’s appointment. Answer two questions below to personalize your appointment guide.
  • Please describe the symptoms and issues you’re having that led you to schedule this online appointment. Start at the beginning of this current episode and tell me how and when things have changed and progressed.
  • What symptoms are you currently experiencing?
  • When was your last set of lab tests?
  • Have you added, changed the dose, or stopped any medications?
  • How much salt do eat in your diet? Tell me about what you eat in a typical day. How much water do you drink each day?
  • Have you had a baseline imaging exam of your kidneys and abdomen?
  • Have you had a brain MRI to look for any aneurysms, known to occur in ADPCKD?
  • Are you having any symptoms, such as back pain or side pain, blood in your urine, or frequent or urgent need to urinate?
  • When did you first notice these symptoms?
  • Do you have high blood pressure?
  • Do you have a family history of kidney disease? Do either one of your parents have autosomal dominant polycystic kidney disease?
  • When was the last time you had a kidney function test?
  • How do you expect my case of autosomal dominant polycystic kidney disease to progress? Will my kidneys eventually fail?
  • What follow up testing do I need and how often?
  • What other complications are possible with polycystic kidney disease?
  • What treatments do I need to protect my kidneys? Are there any medicines that can slow autosomal dominant polycystic kidney disease?
  • What diet or lifestyle changes can I make to protect my kidneys?
  • What are the chances of my children having autosomal dominant polycystic kidney disease?
  • What is most likely causing my symptoms or abnormal lab results?
  • Could another medical condition be causing or contributing to these problems?
  • How do you diagnose autosomal dominant polycystic kidney disease? Are there other forms of the disease?
  • What treatments are available for autosomal dominant polycystic kidney disease? How effective are they?
  • Is autosomal dominant polycystic kidney disease reversible?
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Last Review Date: 2022 Nov 1
THIS TOOL DOES NOT PROVIDE MEDICAL ADVICE. It is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis or treatment. Never ignore professional medical advice in seeking treatment because of something you have read on the site. If you think you may have a medical emergency, immediately call your doctor or dial 911.
  1. Autosomal dominant polycystic kidney disease. (2017)
  2. Finnigan, N.A., et al. (2022). Polycystic kidney disease in adults.