At Your Appointment

Myelofibrosis Appointment Guide

Ask the right questions at your next doctor’s appointment. Answer two questions below to personalize your appointment guide.

• Have you or your loved been diagnosed with myelofibrosis?

  1. Yes, diagnosed
  2. No, undiagnosed
• Will this appointment be an in-office visit or an online/telehealth appointment?

  1. In-office visit
  2. Online/telehealth appointment
Submit

Top Questions Your Doctor May Ask You About Myelofibrosis If you’re having a telehealth appointment, it's helpful to keep these things in mind. Test your computer or smartphone to make sure you can log in without difficulties. Since the doctor can’t examine you in person, be very specific about your symptoms. Print this appointment guide or write down your questions so you remember what to ask, and consider having someone sit with you to listen in. Have your medicines with you so you can show the doctor the labels and doses, and if you are interested in a specific treatment, be sure to ask about it.

• Please describe the symptoms and issues you’re having that led you to schedule this online appointment. Start at the beginning of this current episode and tell me how and when things have changed and progressed.
• What other health conditions do you have? How are you treating and managing them?
• When was your last set of lab tests?
• Are you having any pain or other symptoms, such as coughing up blood?
• What kind of emotional and social support do you have to help you cope with myelofibrosis?
• Would you be willing to consider a clinical trial?
• Describe your symptoms. Are you experiencing fatigue, weakness, night sweats, bone pain, fevers, easy bruising or bleeding, or pain or fullness under your left rib cage?
• How long have you had these symptoms?
• Are your symptoms constant or do they come and go?
• Have you ever worked with chemicals, such as benzene, or had radiation exposure?
• Have you ever been diagnosed with a blood cell disorder?
• Do you have a family history of any type of cancer?
• How are you tolerating your medications? Are you having side effects?
• What is your main concern about a myelofibrosis diagnosis?
• Are you concerned how myelofibrosis may affect other health conditions?
• What new symptoms are you experiencing?

Top Questions To Ask Your Doctor About Myelofibrosis Many people forget to ask important questions at their doctor's appointments. You may want to print or write these questions down before your appointment so you remember to get the answers you need.

• Do my symptoms mean I have myelofibrosis?
• Could another medical condition be causing or contributing to my symptoms?
• How do you diagnose and monitor myelofibrosis? What tests do I need?
• How do you treat myelofibrosis?
• What are the potential complications of myelofibrosis?
• How do you expect my myelofibrosis to progress?
• Does my myelofibrosis require treatment at this time?
• What treatment plan do you recommend for me? And why?
• What are the possible side effects of the treatment you are recommending? Are any of them long-term or permanent?
• What is my prognosis? How might myelofibrosis affect my other health conditions?
• What strategies can help prevent or relieve the side effects I'm experiencing? Do I have other medication options?
• Are my new symptoms related to my myelofibrosis or its treatment?
• What is the best treatment plan for me, including possible clinical trials?
• How might myelofibrosis affect my other health conditions?

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