At Your Appointment

Myelofibrosis Appointment Guide

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Ask the right questions at your next doctor’s appointment. Answer two questions below to personalize your appointment guide.
  • Please describe the symptoms and issues you’re having that led you to schedule this online appointment. Start at the beginning of this current episode and tell me how and when things have changed and progressed.
  • What other health conditions do you have? How are you treating and managing them?
  • When was your last set of lab tests?
  • Are you having any pain or other symptoms, such as coughing up blood?
  • What kind of emotional and social support do you have to help you cope with myelofibrosis?
  • Would you be willing to consider a clinical trial?
  • Describe your symptoms. Are you experiencing fatigue, weakness, night sweats, bone pain, fevers, easy bruising or bleeding, or pain or fullness under your left rib cage?
  • How long have you had these symptoms?
  • Are your symptoms constant or do they come and go?
  • Have you ever worked with chemicals, such as benzene, or had radiation exposure?
  • Have you ever been diagnosed with a blood cell disorder?
  • Do you have a family history of any type of cancer?
  • How are you tolerating your medications? Are you having side effects?
  • What is your main concern about a myelofibrosis diagnosis?
  • Are you concerned how myelofibrosis may affect other health conditions?
  • What new symptoms are you experiencing?
  • Do my symptoms mean I have myelofibrosis?
  • Could another medical condition be causing or contributing to my symptoms?
  • How do you diagnose and monitor myelofibrosis? What tests do I need?
  • How do you treat myelofibrosis?
  • What are the potential complications of myelofibrosis?
  • How do you expect my myelofibrosis to progress?
  • Does my myelofibrosis require treatment at this time?
  • What treatment plan do you recommend for me? And why?
  • What are the possible side effects of the treatment you are recommending? Are any of them long-term or permanent?
  • What is my prognosis? How might myelofibrosis affect my other health conditions?
  • What strategies can help prevent or relieve the side effects I'm experiencing? Do I have other medication options?
  • Are my new symptoms related to my myelofibrosis or its treatment?
  • What is the best treatment plan for me, including possible clinical trials?
  • How might myelofibrosis affect my other health conditions?
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Medical Reviewer: William C. Lloyd III, MD, FACS
Last Review Date: 2018 Dec 20
THIS TOOL DOES NOT PROVIDE MEDICAL ADVICE. It is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis or treatment. Never ignore professional medical advice in seeking treatment because of something you have read on the site. If you think you may have a medical emergency, immediately call your doctor or dial 911.
  1. Chronic Myeloproliferative Neoplasms Treatment (PDQ®)–Health Professional Version: Primary Myelofibrosis. National Cancer Institute. https://www.cancer.gov/types/myeloproliferative/hp/chronic-treatment-pdq#section/_9
  2. Myelofibrosis. Mayo Foundation for Medical Education and Research. https://www.mayoclinic.org/diseases-conditions/myelofibrosis/symptoms-causes/syc-20355057

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