A Physician Who Can Treat My Rare Condition
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I was struck by lightning in my home many years ago and afterward I developed acute intermittent porphyria and cutaneous porphyria. Sunlight is extremely harmful to me and I do my best to minimize my time in light when any appointment or trip out is necessary. Over the following years, I developed fibromyalgia and trigeminal neuralgia as a result of nerve damage from my injury. Porphyria is so rare that I've had a horrible time finding a physician who was familiar with it, and moreover, who understood that being sent out for a ton of referrals for tests I've already had just because I'm a new patient, can make me extremely ill. Dr. Mgbokwere is the first physician I've found in all of El Paso that knew about my condition and did not send me in ten different directions for repeat tests just because my illness is rare. She was knowledgable, kind, empathetic, she understood my needs and best of all, she listened. I can't tell you how happy I am to have found her. I would recommend her to anyone who has an internal or nerve condition that needs a physician who will listen and help. I plan to take my two teenage daughters to Dr. Mgbokwere as well and entrust their care to her and that is the best endorsement I can give.

These submissions are individual opinions of patients based upon their own experiences. By submitting a story about a provider, you are acknowledging that you or a family member was or has been a patient of the provider. Once submitted, stories will be displayed publicly on our website. Since stories are individual opinions of patients, they should not be considered medical advice.

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  • avatar
    rare diseases help
    Dec 2015
    Hello. My name is Megan. I also have two rare disease that another rare symptom to go with them. I went to numerous doctors and no diagnosis or help. Finally went to Emory University Hospital in Atlanta , G.A. They specialize in rare cases such as ours. They saved my life. If you are able to get to Emory I highly recommend it. Hope that helps and things get better for you.

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